Article Text
Abstract
Introduction With the evidence supporting peer involvement, this project evaluated the current peer support provided by an established patient support group. The end goal was to better understand the user experience within this group to demonstrate the value of peer support and identify any unmet needs.
The aim was to evaluate the current peer support service provided by patients and carers following Subarachnoid Haemorrhage (SAH), through participation in online and face-to-face support groups to assess the benefit of this group for both parties.
Case Description A service evaluation was performed through completion of an online mixed methods questionnaire. 35 responses were available for review. Thematic analysis was undertaken which enabled comparisons of themes including age, gender, and length of time since haemorrhage, against perceived recovery and overall satisfaction with the service.
Results 83% (n=29) of respondents report long-term problems such as fatigue, reduced concentration, anxiety, and cognitive changes following SAH. The support group was considered beneficial for users to gain from their peers a better understanding of their condition, problems experienced and ongoing recovery. Themes such as talking to others who have a similar experience helped in understanding the condition better, not feeling so alone, increased confidence, and better coping strategies. 100% (n=35) felt the group had helped with their ongoing issues and 86% (n=30) of respondents felt the group had been a positive experience for them, with 100% (n=35) stating they would recommend the group to others, thus demonstrating the importance of the support group.
Disclosure of Interest no.